Out in the Community: 4 Ways of Advice to Navigate the Autism Universe

The Social Challenges of Autism: Background

When you think of autism, what comes to your mind? Autism, by definition, is a neurological disorder that influences communication, cognition, motor skills, and social interactions. My son Danny has been in ABA (applied behavioral analysis) therapy for years.

Autism Face Forward

Playing at the Mall

As a parent, I have tried to use ABA techniques with Danny. But, I also use a parenting style that is all my own. My reality is autism. But, it isn’t the end all to all circumstances. My son is verbal, but can’t always communicate in a way that shows me what he is feeling out in public. He will unpredictably react sometimes-like putting his fingers in his ears if too many noises are bombarding him or cry hysterically if he is threatened. The sounds of voices and splashing water can threaten Danny’s senses.

Differences

Playing a Pirate

What makes my world with my son different than any other is that for my son, personally, which may not be a choice for everyone, he is on no medications (use nutritional support for Danny neurologically-will be discussed in a later post), and I use prompting engagement in situations where he feels threatened: no gadgets, treats, or external rewards are used. These things that are used, when he needs to complete a task, are praise and celebration as rewards.

The Initial Reaction: Step 1

Water Park Adventure

A situation arose that ignited my son’s emotions. Imagine going to a water park that had a slide, splash pad, and lazy river. Now, my son has been showing tremendous strides towards water in accepting it touching him and interacting with water. So, I thought this would be so much fun for him. However, the other scary reaction occurred which shocked me at first. I guess it shouldn’t have because with autism is unpredictability. As I am trying to help my jellyfish (Danny) to navigate through the autism universe, I first saw my son have a meltdown. He screamed, ran away from the water not even putting his foot in the spray taps, and said “I go home.” I didn’t say anything but process and lead him back to a chair nearby. I had my other two children with me -five year old son and daughter who is eight. I am the only adult with them. I thought I could navigate through this adventure today and have some fun. I am used to going it alone with my husband living away in the army.

Navigating the Waters-Encourage Step 2

My other two children begged not to go home. I said to them it’s ok let’s just give Danny some time, and I directed my other two kids to play nearby in the spray park. I looked at Danny head on and said if we go home we cannot come back, and I know you love the spray park. “Look how much fun the water is! Everyone is playing; it’s so much fun Danny.” I stood up with Danny and took him by the hand. As soon as we got the edge of the shallow water he screamed and ran back to his chair.

Navigating the Environment Step 3

Danny plugged his ears. The noise must have been excruciating for his brain to process. Then, I realized it was the noise in combination with the water that scared him. Autism doesn’t allow for sensory information to be processed properly.

So, I communicated that you are a big boy who can have fun too. Let us try together- just try one time. “If you don’t like the water here, we will sit back down.” So, I said in a big voice of praise “Danny, let’s walk in together.” He whined a little then said “I am scared.”

Visual Picture Step 4

We Got there

I feel it is important to give Danny a visual picture when he is scared that will squash that feeling. I said look at your feet, you are touching the bottom and I can see your toes. See, you are not sinking. This is fun. Danny had a glimmer of a smile, flash across his face. Then I knew we just conquered something small but big enough for Danny to have fun today.

Autistic Universe Introduction

If you are reading this it means you are looking for advice, tips, or just an ear to listen to the struggles of the world of autism.  Believe me, I am walking the road of autism at every moment. 

Beginning the Journey

​My son was born on August 10, 2012, and there is no end to autism. It is an everyday adventure and sometimes ending the day in tears. My son did not speak until the age of four, but now he can speak and other issues have come to the surface: auditory sensitivities. 

Jellyfish Danny

​If you are wondering why I chose a jellyfish as my logo it is because that is my nickname for my son: jellyfish. He is constantly spinning and moving and gliding as if he is a jellyfish. He is beautiful and sometimes shows unpredictability, but he is all the way unique.

Autistic Universe Introduction

Autism Walking the Road

If you are reading this it means you are looking for advice, tips, or just an ear to listen to the struggles of the world of autism.  Believe me, I am walking the road of autism at every moment. 

The Joy and Struggle

My son was born on August 10, 2012, and there is no end to autism. It is an everyday adventure and sometimes ending the day in tears. My son did not speak until the age of four, but now he can speak and other issues have come to the surface: auditory sensitivities. 

Let’s Meet the Real Danny in Real Time

If you are wondering why I chose a jellyfish as my logo it is because that is my nickname for my son: jellyfish. He is constantly spinning and moving and gliding as if he is a jellyfish. He is beautiful and sometimes shows unpredictability, but he is all the way unique.

Welcome to Our Journey

Sometimes you will view Danny unable to process his world around him. But, as you are following our journey, you will see moments that require Danny to engage. Unfortunately, he can’t always engage. So, what does a Mom or Dad do in these moments?

Welcome to Danny’s World of Autism

Mom’s Advice to the Autistic Universe: Navigating in the Universe

Be yourself; Everyone else is already taken.

— Oscar Wilde.

There is no need to struggle with autism and think you are alone in this journey. The journey I am talking about is all aspects that surround autism: aggressive behaviors, food issues, frustrations from your child, task-avoidance, ritualistic behaviors. Among the many mothers and fathers that surround their child with love and understanding when they hear those words, “your child has autism,” I am here to provide understanding, love, and support through advice, tips, and watching my son grow in his journey.

Walking the Road of Autism

If you are reading this it means you are looking for advice, tips, or just an ear to listen to the struggles of the world of autism.  Believe me, I am walking the road of autism at every moment. 

Challenges are the Journey

​My son was born on August 10, 2012, and there is no end to autism. It is an everyday adventure and sometimes ending the day in tears. My son did not speak until the age of four, but now he can speak and other issues have come to the surface: auditory sensitivities. 

Introduce Yourself (Example Post)

This is an example post, originally published as part of Blogging University. Enroll in one of our ten programs, and start your blog right.

You’re going to publish a post today. Don’t worry about how your blog looks. Don’t worry if you haven’t given it a name yet, or you’re feeling overwhelmed. Just click the “New Post” button, and tell us why you’re here.

Why do this?

  • Because it gives new readers context. What are you about? Why should they read your blog?
  • Because it will help you focus you own ideas about your blog and what you’d like to do with it.

The post can be short or long, a personal intro to your life or a bloggy mission statement, a manifesto for the future or a simple outline of your the types of things you hope to publish.

To help you get started, here are a few questions:

  • Why are you blogging publicly, rather than keeping a personal journal?
  • What topics do you think you’ll write about?
  • Who would you love to connect with via your blog?
  • If you blog successfully throughout the next year, what would you hope to have accomplished?

You’re not locked into any of this; one of the wonderful things about blogs is how they constantly evolve as we learn, grow, and interact with one another — but it’s good to know where and why you started, and articulating your goals may just give you a few other post ideas.

Can’t think how to get started? Just write the first thing that pops into your head. Anne Lamott, author of a book on writing we love, says that you need to give yourself permission to write a “crappy first draft”. Anne makes a great point — just start writing, and worry about editing it later.

When you’re ready to publish, give your post three to five tags that describe your blog’s focus — writing, photography, fiction, parenting, food, cars, movies, sports, whatever. These tags will help others who care about your topics find you in the Reader. Make sure one of the tags is “zerotohero,” so other new bloggers can find you, too.